With a little luck we will go over 8000 followers by the end of this weekend. Well actually its nothing to do with luck I guess. Its down to the enthusiasm and sheer dedication of some of the most amazing people I have ever met.
I sat there today wondering why this is happening.
I camr to a conclusion that may sound very biased but it is based on what I saw happen while Estella was alive.
She had something very special about her where she seemed to win the hearts of people very quickly and very truthfully . There was something amazing in her eyes. We know that children with SMA overcompensate with purer emotions and oodles of intelligence but there was always something special about Esttella.
She knew how upset we were that she was dying and sometimes she would give you a look that melted the heart and sank into your soul. A look that said - Its going to be Ok. I am going to leave you but I have had a wonderful life with so much love and so many experiences. We told her right from the start that we would fight while she fought but that when she was tired she would have to tell us and then we could say goodbye.
She came close to death several times and bounced back - confounding Doctors and experts but on the day she died her eyes were saying goodbye.
My point is that somehow that depth and that vision and that purity come across to those who never met her. Maria says often that Estella was not a little angel -she was a little bugger. She played with us and made our emotions dance and cried with us
but in the end she helped us while she left us. She helped us by leaving with no pain and no drama and no horrific tubes and pipes and medical nonsense. She left us because she agreed that it was time to go
And that was the only way I could ever saysgoodbye
and that was the only way I could ever sleep or smile again
And that was the only way that our little tinker showed that she loved us beyond love.
Am I suprised that people are doing so much to help us ? Oh yes
Am i suprised that they do so much for the dearest sweetest girl I ever met ?
Not one bit.
You are exceptional people. You are changing the world and if one day a baby lives because of you and because of us and because of Estella
Then this is fair - and this is just - and this is beautiful