A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011
She was a beautiful girl, thanks for sharing. What would we do without photos? I know the photos of my little girl are one of my most treasured posession.
Beautiful; a picture tells a thousands words Xxxx
Thank u for sharing your story. She was beautiful!! My heart was touched by your story. I pray God can give u peace during this time. U can fiind peace in Jesus, he is the Prince of peace. Isaiah 9:6. Mathew 11:28-30
Beautiful, beautiful photos xxx
Estella has a new friend in The Violet Foundation. What an angel. I wish I could have found her story earlier. RIP beautiful one. We are putting together a posting later this week spotlighting a number of SMA victims and Estella will absolutely be on that list